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I had the pleasure of attending the screening of Lotte Hoffman’s life review video. She invited her care team from Hospice Care of the West and the volunteer life review video editor, Steffani Francis, over for brunch and the video screening. Lotte absolutely loved her life review video, a gift from Hospice Care of the West.  Shannon Moore, the volunteer director, said Lotte, a holocaust survivor, is one of the most interesting women she had ever interviewed for a life review video.

I had to agree as we gathered around to watch the life review on the big screen. Lotte told the story of going into hiding on Kristallnacht, or “Night of Broken Glass,” when the Nazis invaded Jewish homes, synagogues and stores in Germany. They hauled thousands of Jews off to concentration camps that night. As the historic images of Kristallnacht flashed on the screen, Lotte recalled being a child hiding with her mother and sister at the neighbor’s house. She shared this piece of personal history along with many other stories and lessons for posterity. You could see the glimmer in her eye as she flashed forward and backward in time watching her life preserved in a documentary film. This is why we do what we do in the life review video volunteer program to celebrate the lives of our hospice patients and let them know how they will be remembered. Lotte gave us a glimpse of the old world in the present day. Thank you for a lovely brunch Lotte and thank you for sharing your life with us!

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Hospice Care of the West Commercial from point of view of the doctor to raise awareness that patients have a choices in hospice and end-of-life care.

Check out our new commercial! Dr. Kasra Morsh and Dr. Kang Hsu joined us at Hospice Care of the West to film our fourth commercial.  Both doctors gave us such insight on why they choose Hospice Care of the West for their patients. Often folks hear about hospice when it’s too late and so we created these commercials to educate the community and raise awareness. Patients and families have choices even in their most vulnerable hour. Dr. Morsh talked of how the whole team—nurse, social worker, spiritual care coordinator and home health aid have a lot of heart, compassionate and drive to go beyond their call to make patients comfortable and provide a safety net of support for the family. Dr. Hsu agreed that the hospice team takes care of the patient and the family.

Dr. Hsu enlightened us on recent studies that report how patients often live longer than the expected prognosis of six months or less if they transition into hospice earlier in their journey because their pain is under control. With hospice, patients have a better quality of life surrounded by a team dedicated to their physical, emotional, familial and financial needs in their home, or the place they call home. The doctors shared how they approach end-of-life conversations with their patients, more importantly we learned that they’ve never had a patient unhappy after transitioning their care to hospice. Choosing the right hospice is so important when it comes to creating a comfortable, pain-free environment filled with dignity for the patient and the family.

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Debbie Robson, Executive Director of Hospice Care of the West, elected to California Hospice and Palliative Care Association Board of Directors Region 6.

Debbie Robson, the renowned innovative Executive Director of Hospice Care of the West, is elected to the Board of Directors of California Hospice and Palliative Care Association (CHAPCA). She will represent Region 6 that encompasses hospice organizations in Los Angeles, Orange, Santa Barbara and Ventura counties. The mission of CHAPCA is to promote and strengthen the delivery of hospice care for patients with life-limiting illnesses and their families through education and advocacy.

“I’m honored by the opportunity to be a unifying voice for the hospices in our region,” said Robson. “I look forward to continuing the mission of CHAPCA to educate the community about the benefits of hospice and innovating hospice care from the front lines. I hope to continue to change the public conversation about hospice from dying to celebrating life.”

Robson has more than 20 years experience in end-of-life care that began as a hospice and home health nurse. Under Robson’s leadership, Hospice Care of the West received the Outstanding Program Achievement Award given by the California Hospice and Palliative Care Association to an innovative hospice program that can an example for the hospice community in 2012. Robson was also honored with SeniorServ’s “Executive Director of the Year” receiving the Senior Care Hero Award in 2012.

“We’re excited to welcome Debbie to the Board of Directors,” Susan Negreen, President of CHAPCA, said. “Her experience and vision will strengthen our mission at CHAPCA. And I’d like to congratulate her on the vote of confidence from the hospice community.”

With Robson at the helm, Hospice Care of the West has risen to become a premier-award-winning hospice providing patients and their families with exceptional care and volunteer programs that give life review videos, last wish celebrations and vigil volunteers to ensure that end of life is a meaningful and memorable journey. The programs at Hospice Care of the West go above the required Medicare benefit to transform a stage of life that has been historically alienating into a time to honor a patient’s life with the family, community and future generations. In 2011, Robson collaborated with Denise Carson, author of the book Parting Ways, to launch an online resource OurLifeCelebrations.com to educate patients, families and health care providers about hospice and new ways to approach, prepare for, and celebrate life’s final journey.

Robson is spreading the mission of celebrating life with Community Reminiscing Corners that invite healthy seniors at assisted living facilities and senior centers to record their wisdom on video and learn about the value of hospice care. Internally, Robson launched Reminiscing Corners for her staff to sit down with veteran life story documentary filmmaker, Jay Gianukos, to share their wisdom and life stories. The Reminiscing Corner videos are then played at the bi-monthly Celebration!, a gathering of the entire hospice team

to celebrate each other and remember the patients who they have cared for and passed on. Celebration is a gathering for reflection and renewal to strengthen and support the hospice team in providing the best care to their patients and honoring their life’s journey. Catch a glimpse of Celebration here.

Prior to Hospice Care of the West, Robson worked as a Regional Hospice Consultant at Heartland Hospice. She also served as the Director of Hospice for St. Joseph Hospice in Orange, Calif. Robson completed her Bachelors of Science in Nursing and Masters in Business Administration in Healthcare Management.

Robson will begin her newly elected position on the Board of Directors of CHAPCA immediately and will serve for three years. She hopes to unite the hospices in a common goal to raise awareness about hospice so patients and their families can receive hospice relief sooner in their journey.

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Boyd Hendrickson, Skilled Healthcare CEO, (right), Roland Rapp and Debbie Robson, Hospice Care of the West Executive Director, celebrate her Senior Care Hero Award for Executive Director of the Year honor.

Congratulations Debbie Robson for receiving the Senior Care Hero Award! You are so deserving of the “champion” spotlight for seniors. Bravo!! Your leadership as Executive Director at Hospice Care of the West is now recognized beyond our walls. Each day, you transform the lives of your patients and inspire the team at Hospice Care of the West to celebrate life. I’m honored to work alongside you in our mission. I feel like this mission is truly a movement set in motion by you believing in our vision to become a shining beacon for changing how seniors

live in life’s final frontier.

The Senior Care Hero Awards at the Presidential Nixon Library was reminiscent of the Oscars night with a red carpet lit up by the magnificent lives dedicated to senior care.  It’s a fitting event as we are in the midst of an End-of-Life Revolution. Individuals, families and communities are searching for new ways to make  this stage of life a grand finale.

Below is a recap from Boyd Hendrickson, CEO of Skilled Healthcare.

I am pleased to announce that Debbie Robson, Executive Director of Hospice Care of the West, was the recipient of the Outstanding Executive Director of the Year. Deb made it through three tiers of voting. The first round was the People’s Choice, and Deb was chosen by popular vote. The second round of voting was by the Senior Care Hero Awards Council of Advisors which narrowed each field. The third and final round of voting was conducted by the Academy of Leaders. Deb received her award the evening of September 9 in the presence of her husband Mark, Hospice Care of the West’s Medical Director, Dr. Jorge Rivero (who himself was a nominee for Outstanding Physician and made it to the final tier), Boyd Hendrickson, Dev Ghose, Roland Rapp, and an intimate gathering of about 400 other attendees.

 The Senior Care Hero Awards are driven by Community SeniorServ, Inc. Community SeniorServ is a nonprofit organization dedicated to serving as an advocate for Orange County’s older adults. This organization is committed to providing comprehensive services essential to their well-being and independence and provides vital safety net services to more than 11,000 senior citizens a year. Their goal is to ensure sustainability to meet the growing demand for senior services and to reduce dependency on government funding. Community SeniorServ is one of the nation’s largest elderly nutrition programs and a respected leader in the national aging network preparing and serving over 1.5 million meals a year to seniors at home and at 27 nutrition centers. That’s over 5,000 meals every day.

Their mission is simple: To improve the quality of life for older adults, persons with disabilities, and their families by creating a safety net of health, nutrition, and supportive services designed to enhance their independence, well being, and dignity.

Congratulations, Deb, and thank you for making a difference!

 Boyd Hendrickson

During her acceptance speech, Debbie reflected on her mother’s guidance that led her where she is today.  As a former hospice nurse turned executive director, Debbie is no stranger to what it takes day to day to care for our ailing parents, but beyond that she knows taking time out to create memories can often shift how we spend time at the bedside. At Hospice Care of the West, we are giving seniors the recipes and inspirations on this blog. Our programs such as the Life Review Video bring families together to record a last conversation about wisdom, life lessons and hopes and dreams to pass on the to next generations. We are teaching people that you don’t need to wait to the end to celebrate one’s life, you can do it today, right now.

We’ve built a rich resource of authentic stories about our patients that we hope one day will be the norm rather than the exception. With Debbie Robson at the helm of Hospice Care of the West, I believe this is possible. We have created the kind of place that can inspire seniors to live richly even in their most vulnerable stage of life. On our blog are examples from our 105-year-old patient Bessie who courageously flew in the big balloon weeks before her last breath to Dee J. who celebrated his 100 years of life with 200 of his closest friends and family after he entered hospice.

My nomination for Debbie Robson is below. Thank you for believing in our mission!

Why should this person be nominated? What makes nominee unique; why should he or she be selected as the winner of this category? ?Debbie Robson, Executive Director, has created a hospice that is a beacon for all other hospices and health care professionals on how we can change this stage of life for seniors into a time when families and communities can come together to celebrate their lives, wisdom and legacies. Click here to see what makes Hospice Care of the West exceptional

Within the hospice, we have launched Reminiscing Corners that bring together members of the hospice team to share their wisdom and life stories with a documentary filmmaker, so that we’re not only celebrating the lives of our patients but also each other. Check out the Reminiscing Corner spotlighting and celebrating the lives of our social workers. Click here Social Workers Reminiscing Corner. 

Reminiscing Corner videos are played at an event we call Celebration that brings together the entire hospice team to reflect, renew and celebrate life. Check Debbie at this Reminiscing Corner

Deb is spearheading a movement at Hospice Care of the West that will change how we care for seniors and their families. We invite seniors from the community to Reminiscing Corners to teach the value of recording your wisdom and passing on your hopes and dreams to the next generation. This shift in how we approach end of life brings

meaning, value, hope, dignity and for this we must say thank you to Deb for being an inspirational, innovative leader at Hospice Care of the West.

What is this nominee’s involvement in senior care or senior issues? ?Inspiring us to think differently about how we live in life’s last chapter! As Executive Director of Hospice Care of the West, Debbie Robson has embraced the philosophy that seniors must celebrate their lives and preserve their legacy of memories to pass on to the next generation. We have a blog called OurLifeCelebrations.com that is a resource for the community to be inspired to think differently about how to rewrite how we live in life’s last chapter. Hospice Care of the West has a volunteer life review video program headed by a veteran life story documentary filmmaker who video records interviews with the patient so he or she can pass on wisdom to the next generation. Check out a Life Review

Research shows one of the biggest assaults on one’s dignity at the end of life is that nothing of who or what I am will live on after I die. These life review interviews edited with music and photos provide the patient with something tangible to give as gift to their family in a time of life that often feels wrenching. At Hospice Care of the West, we also have a Dream Catchers program that connects volunteer high school students who make last wishes come true for hospice patients. We have a vigil volunteer program that matches volunteers to hold hands with hospice patients at the end to ensure no one dies alone. These programs create an exceptional experience for patients and their families on the end of life journey. Not only do they change the way the family sees the senior but also the community, because these programs create intergenerational conversations and connections that uplift our seniors to be dignified and celebrated in often their most vulnerable hour.

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On local Channel 6 News, Patty Mouton, family member of a patient with Alzheimer’s disease, shares her story of choices and support received from Hospice Care of the West,

at a challenging period in her mother-in-law’s life. Initially, she was shocke

d when the doctor suggested hospice, but in hindsight she realized hospice care was the right choice for her mother-in-law at that stage of her journey. Patty is also the Vice President of Outreach and Advocacy of the Alzheimer’s Association Orange County Chapter, so this journey struck her on a personal and professional level.

“Hospice was a tremendous benefit,” she says. Patty talked about the interdisciplinary team such as the social worker who helped smooth out the rough family dynamics and the chaplain who guided her family spiritually find peace and connect with their local church. The Hospice Care of the West team even sent a hairdresser who came and cut her hair. “She looked just adorable,” Patty reflected. But more importantly, “she was comfortable,” Patty said. Hospice and the end of life is often a journey into the unknown and even more challenging when a parent has Alzheimer’s disease. Click below to listen to Patty’s interview with the Channel

6 morning news anchor.

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Nancy Johnson, Hairstylist Volunteer for Hospice Care of the West

Nancy Johnson received a call that Katherine, a 93-year-old hospice patient, needed a haircut and style. It would probably be her last. Nancy is a volunteer hairstylist for Hospice Care of the West in Orange County. She is on call to give haircuts and makeovers for any patients wishing to feel and look good.

Katherine requested Nancy come right away. Upon arriving at Katherine’s Laguna Beach home, Les, her son answered the door. Nancy entered to see a frail woman connected to an oxygen tank. Her hair was already washed and ready for a cut. So, they walked into the kitchen, and Katherine gave specific directions on how she wanted her hair cut and styled.

“I want it short in the back, longer on top,” Katherine said.

After Nancy spun her magic, she gave a mirror to Katherine.

“Outstanding,” Katherine said beaming.

Nancy turned to Les.

“When was the last time you had your hair cut?”

“This is not about me it’s about her,” Les said. But he couldn’t remember the last time as he had been so wrapped up with caring for his mother. An hour later, Les sported a new haircut too. He was filled with gratitude that Nancy had taken the time to care for both of them.

Katherine passed away the next day.

“She looked good for Jesus,” Nancy said. “I think in my heart of hearts, she knew. I hope Jesus likes my work.”

When Nancy was just 25 years old, her mother was dying from esophageal cancer.  She gave her mother a last haircut and perm at home just three days before she passed away.

“It was a bittersweet,” Nancy says recalling combing and styling her mother’s hair for the last time. “I knew this was it, but it made her happy and in that moment I was happy too.”

That’s why Nancy and her calling to just make people feel good in the moment while on hospice is in sync with the team at Hospice Care of the West who believe every moment we have a chance to transform, celebrate and honor the lives of our patients.  Nancy has been a hairstylist volunteer for Hospice Care of the West for about six months now.

She was introduced to Hospice Care of the West in 2010 when her husband, Paul Johnson, the longtime NBC4 Today in LA morning traffic reporter, went into hospice. He was diagnosed with a glioblastoma, the deadliest form of brain cancer. Paul made the decision not to have any treatment radiation or chemotherapy.

“I don’t want to be sick while I’m sick,” Paul said to Nancy. “I want to live the bucket list while

there’s still time.”

So, they rode a B-29 bomber, saw a live performance of South Pacific and every weekend they celebrated his life with friends coming in from near and far for backyard barbecues.

“He had an amazing quality of life,” Nancy said. “If there is such a thing as a beautiful death, he had one. He died at home in my arms and he was not in pain. Deb Robson, of Hospice Care of the West, was with me, every step of the way. Sometimes she would come at midnight if I needed her. “

So, Nancy wanted to find a way to give back. She married her love for cutting hair with volunteering for the hospice.

She and Paul knew that she would probably be widowed as he was 22 years her senior. She recalled his first heart attack in 2006 that magnified this reality. At the time Nancy had retired for four years from cutting hair to spend time golfing and traveling with Paul. But after the heart attack, she wanted to go back to work. Within months of starting work at a shop in Newport Beach, the owners wanted to sell.

“He bought the shop for me, so I would have something to do after he died,” she said.

Whether at her shop, Shear Attitude in Newport Beach, or in the home of a hospice patient, Nancy wakes up every morning excited about who is going to be in her chair that day.

At just five years old, Nancy felt the first spark of passion to become a hairstylist when cutting her sister’s hair. The scissors meant for paper didn’t cut her hair perfect but the feeling of transforming her sister’s appearance resonated.  She equally recalls her mother’s displeasure with her sister’s new hairdo.

Her mother took the scissors away. But not for long, by 16 years old, Nancy knew cutting hair would be her life profession, though her mother wasn’t pleased.

“She wanted me to be a nurse,” Nancy says recalling her mother’s wish.

By high school, she was the go-to girl for hair and make-up for all of her friends. And she joined cosmetology school after graduation. She’s been behind the chair cutting hair since 1979.

“I don’t regret a day of it because I do what I love,” Nancy says. “I’ve always been a hairdresser. Things you enjoy as a child that you pursue as adult will probably make you very happy and very successful and that’s where I am at.”

Though Nancy didn’t become a nurse, her hospice volunteer service caring for hospice patients must make her mother proud.

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Bessie Anderson, 105, of Laguna Niguel is flying high as she fulfills her dream of soaring in the Great Park Balloon. CINDY YAMANAKA, THE ORANGE COUNTY REGISTER

Shortly after her 105th birthday, hospice patient Bessie Anderson prepares to go up for a balloon ride at the Great Park in Irvine. The big orange helium balloon is nearly 74 feet in diameter. On the flight deck, Bessie is tucked into a wheelchair pushed by her granddaughter, Sheryl Villapania, 48, of Murrietta, who uses a wipe board to communicate to her. Though Bessie’s hearing is diminished, she works around this and continues to engage in conversation.

Bessie Anderson, 105, of Laguna Niguel is flying high as she fulfills her dream of soaring in the Great Park Balloon. The Irvine attraction flies 400 ft. high with a 360-degree view spanning up to 40 miles. Dream Catchers, made up of high school volunteers, grant last wishes for hospice patients. Anderson was thrilled with the views on this clear day and was grateful to everyone who made her dream come true.

“Are you scared?” Sheryl writes on the board.

Bessie reads the board then beams and says, “No, I’m excited.”

Sheryl Villapania of Murrieta, from left, wheels her grandma Bessie Anderson, 105, towards her dream ride as Tesoro High junior Emily Beals, 16, Dream Catchers president, gets a hug from Nancy Nicolosi, Hospice Care of the West nurse. Anderson’s wish was to fly on the Great Park Balloon in Irvine. Dream Catchers volunteers grant last wishes for hospice patients. CINDY YAMANAKA, THE ORANGE COUNTY REGISTER

Bessie, of Laguna Nigel, is dressed up for her adventure flight. Her white hair is curled, blush enhances her cheekbones and a pearl necklace punctuates her coral silk blouse. Since the Great Park started free balloon rides in 2007, she has wanted to go up but never quite made it.

When her nurse, Nancy Nicolosi, 52, from Hospice Care of the West, talked of her recent flight, Bessie sat up in bed.

“I want to go for a balloon ride at the Great Park,” she said.

Nancy called on Dream Catchers, a group of high school volunteers who make last wishes come true for hospice patients. Emily Beals, 16, the new president of the organization, answered the call. She is a junior at Tesoro High School and recently took over from the founder of Dream Catchers, Caitlin Crommett, 17, who went off to college and started a chapter at Notre Dame in Indiana.

Since the organization began two years ago, Dream Catchers has granted 22 dying wishes.

Caitlin’s inspiration for making dreams happen for hospice patients came from volunteering since seventh grade for Hospice Care of the West and a scene from the movie “Patch Adams.”  In the movie, the doctor is focused on not just treating the disease but caring for the patients. The spark for Dream Catchers came when the doctor inspires a depressed old woman to eat again by making her dream — of plunging into a pool of spaghetti — a reality.

The Dream Catchers have taken hospice patients for one last sail on the Pacific, a walk with their family down Main Street at Disneyland and out for a special reunion dinner with family and friends, just to name a few. One of their goals is to reunite families for a shared moment when time is running out.

The balloon ride is the 23rd dream and Emily’s first as president of Dream Catchers. She reserved the balloon for Bessie with park operators.

As she arrives at the balloon flight deck, Emily tries to mask her jitters. Though there are four generations between them, Emily is more afraid of riding in the balloon than Bessie is.

“I would never do this on my own. I’m only doing this for Bessie,” she says. “My life is on the line here.”

Emily nervously strolls alongside Bessie, Sheryl and Nancy. The balloon operators strap Bessie in and electronically lift her onto the gondola. Bessie smiles with glee. Sheryl wheels her grandmother along the gondola edge as they choose a good lookout point. Emily holds on to Nancy, the nurse, as they step into the gondola.

The gate locks them in and they are ready for take off.

Up and up and up, the balloon takes flight, and Bessie says, “It’s so smooth and so quiet.”

She recalls how loud a ride on the Goodyear blimp was in the 1920s and then reflects on that time when people would step out of their houses to watch the blimp fly by.

Bessie Anderson, 105, of Laguna Niguel, is asked if the Great Park Balloon flight really was great by Emily Beals, 16, the Dream Catchers president. The charity makes last wishes come true for hospice patients. CINDY YAMANAKA, THE ORANGE COUNTY REGISTER

The balloon reaches its zenith and floats. Emily’s

knuckles turn white as she grips the side of the gondola and looks out at the horizon, not daring to look down. The wind blows through Bessie’s hair and tickles her cheeks. She looks down at Orange County below without any sign of fear; she remembers that it was all orange groves when she was growing up.

“It’s like being in a skyscraper,” she says. “How high are we?”

The balloon operator says we are 40 stories high, about 400 feet up with a 360-degree view. When the balloon starts its descent, Emily looks relived. Upon landing, Bessie is glowing.

“Ahhhhh, that was a thrill! You know everybody doesn’t get to do that.”

Tears flow down Sheryl’s cheeks.

“I love to see her happy like that.” Sheryl says her father, Bessie’s son, just died in April. At the time, Bessie had pneumonia and suffered a heart attack that sent her into hospice care, which is available to those with six months or less to live.

“She still enjoys herself, every little piece of life,” Sheryl says.

“Yes, we did it,” Nancy says to Bessie.

After the flight, Caitlin’s Mom, Colleen Crommett, spreads a buffet of sandwiches on tables near the flight deck. As Bessie enjoys the lunch, her granddaughter, Sheryl explains on the wipe board how Emily organized this balloon ride. Bessie is amazed and beckons Emily to her side.

“Thank you so much,” she says with glistening eyes. “It was very sweet of you, dear.”

“You’re welcome Bessie,” Emily writes on the board.

“I know it

was a lot of work,” Bessie says to Emily. “If somebody told me I would get to do something like this at my age, I would never have believed them. So, I did. Everybody doesn’t get to ride in the big balloon.”

The story originally appeared in my Orange County Register Column Parting Ways. Contact the writer: denise@denisecarson.com

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Hospice Care of the West launched a family series of commercials that capture the experiences of recording a life review video for patients and their children. Take a peek…

We interviewed Richard Marting, the son of John Marting, a World War II veteran who epitomized the Greatest Generation. John valued his wife Marjorie of 61 years, being a good father to his two sons and serving his country at war. In the interview with Richard, we discovered the life review video was the greatest gift to his family because John tells his story in his own words. The interview brought three generations of the Marting family together to listen to their patriarch. When Richard watches that video, he feels close to his father again. See commercial here

In the second commercial, we interview Susan Mullins, the remarkable daughter of Mary Burchard, reflecting on the life review interview. Susan says the recorded interview was the most wonderful time spent listening to her mother telling stories. Mary relives her piloting military aircraft in the clouds above America during World War II. Susan and her sister, Eileen McDargh, loved reminiscing in the sun with their mother. Though memories unfortunately fade with time, this life review video preserves Mary’s voice, her laugh, her smile and her extraordinary life journey that will now be passed down now from generation to generation.

The life review program is the brainchild of Donna Miller, Director of Volunteer Services at Hospice Care of the West. She creates these magical moments for families to come together and reminisce at a time when they’re feeling wrenched apart. These life review videos help the hospice patient and their family to pause and remember the good times they’ve shared together. For the children of hospice patients to be able to say that they’ve enjoyed this time with their parents in hospice is a tribute to our mission here at Our Celebration to Life.

To produce these authentic interviews with the children of hospice patients, we called on award-wining documentary filmmaker, Jay Gianukos, who has spent more than a decade filming life stories for families. Hospice Care of the West is the only hospice sitting down with their patients to video record precious life stories to pass on to their families.

These commercials are currently airing on Channel 6 in South Orange County. We hope the commercial series will help people understand the value of recording a legacy of memories for their families, especially at the end of life. Hospice Care of the West is a compass and guide on the end of life journey for these families. It’s not easy when you have to become a parent to your parent. But the life review video helped both of these children to remember the extraordinary lives their parents led even in their most fragile and vulnerable hour of life. Susan helps us all to realize that hospice and the life review video wasn’t just a gift

for her mother, but also for their entire family.

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