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Eileen McDargh and Susan Mullins, daughters of hospice patient Mary Burchard, shared their experiences with Hospice Care of the West on the Channel 6 morning news. This interview is both touching and resourceful for children caring for aging parents. Eileen and Susan delve into how they made the choice for hospice. More specifically, they discuss how Hospice Care of the West had the best philosophy of care that aligned with their wishes to give their mother the most joy and comfort that she could experience on her final journey.

They also talk about how Hospice Care of the West celebrated their mother’s life through recording her life review video interview. Their mother, Mary, reflected on her life as a doctor, a mother and a

pilot in World War II. In the life review, they sang songs with their mother, a favorite family pastime when growing up. This interview is such a resource for any family thinking about hospice for their family member. Check it out.
http://www.youtube.com/watch?v=5iXB1kG2OsE

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 By Dave Boyle

“The first thing to go from my memory after my dad died was his voice. The second, his laugh.”

Denise Carson

Denise was only twelve years old when her father, Richard, passed away in 1987. She still remembers the sterile, unfriendly atmosphere of the hospital room, the tubes, and the unnecessary ambulance rides. She knew, as much as any 12 year old can know, that this was no way to spend the last days of your life.

Her grandparents had met in the Philippines; her grandfather an American in the U.S. Army and her grandmother 100% Pilipino. Her dad was born in 1949 and immigrated to the United States in 1967. He was a great dancer, had an infectious smile, and owned his own business. He was just 37 years old when he passed away from cancer.

“When you lose a father at twelve years of age, you just don’t lose him at twelve,” Denise says, “you also lose him on your 13^th birthday. You lose him on your 16^th birthday. You lose him when you get your driver’s license. You lose him when you graduate from high school. You lose him when you graduate from college. You lose him at all the milestones, as you try to make sense of your life through the lens of his absence.”  Denise has memories of her dad, happy memories, and loving memories. But there are not enough of them and the ones she has are not as clear as she would have liked them to be.

Her mom and dad had divorced years earlier, but this of course was way different. Now she, her brother Ryan and her mom Linda were truly on their own. Denise’s mom was a very strong and courageous woman, and time does not permit the thousands of words it would take to do her justice. The best way to meet Linda Carson would be to read Denise’s book, “Parting Ways.” I usually find myself choosing relatively unimportant sporting events or inane political shows on television over getting lost in a good book, but this book I polished off in a few days. Denise’s depictions of her mom captivated me and made me feel like I know her. I also got to know Denise better, which is one reason why I wanted to celebrate her today.

After her mom was diagnosed with cancer, Denise decided that it wasn’t going to be like it was with her dad. This would be different. Mom would be celebrated. If it’s true that you only die when the memory of you is gone from people’s minds and hearts, then Linda Carson was never going to die.

The first thing Denise did with her mom was Life Review, learning many things  that she hadn’t known before and understanding her mom liked she had never understood her before. Denise could feel her heart melting as she listened to her mom share her pain and admit her shortcomings. Life Review also led Denise and her mom to do something that most people in that situation don’t even think of doing, cleaning out the closet, while the person is still alive. In her book Denise writes the following. “Cleaning out the closet is usually a task performed after a person dies. The ritual marks a state of acceptance that the deceased will not be returning. After the funeral and after everyone stops coming around, you are left to enter the wardrobe wafting with scents of your loved one. And by then the clothes are just clothes, and the books are just books. But what if you cleaned out the closet with the person there? I believe the life review helped us together reach this revelatory stage of acceptance before her death.”

The second phase was the Last Wish. It was now November of 2001, three months before her mom’s passing. How do you celebrate the last Thanksgiving? The last Christmas?  The last birthday? For Denise it was going through recipes with her mom and cooking Thanksgiving dinner. It was trimming the Christmas tree as Linda entertained with stories of the history of the ornaments. And it was inviting close friends over for a birthday celebration complete with cake and candles, as well as a surprise visit from the pastors and members of the choir of Linda’s home church, saying a prayer and singing Amazing Grace for her.

Denise Carson and her Mother, Linda Carson.

The final part of the journey with her mom was sitting vigil at her bedside in her last days and hours. Scripture passages were read from her well-worn Bible. Instrumental praise music hummed on the CD player. Prayers were said, and a sponge bath was given followed by a fresh pink nightgown. A last “I love you” from Linda to Denise, and a sunset. And then at 2:07, Sunday February 10^th, 2002, Linda Carson went into the arms of her Heavenly Father, surrounded by family and friends.

Denise writes in her book, “They say hearing is the last sense to go. I recited the Twenty-Third Psalm by heart. Then I opened her Bible and read Psalm 139. As I read the first verse, a song came to me, a song I hadn’t sung since I was a girl in Sunday School. The song was Psalm 139 called ‘Search Me of God.’ I sang loudly, like a sorrowful siren expelling my grief from the depths of my soul with every note.”

Search me, oh God, you know my heart; try me and know my anxious thoughts.

See if there be any hurtful way in me and lead me in the everlasting way.

Which brings me to why we’re here today. Four years after her mom’s passing Denise crossed paths with Donna Miller, who was then the Volunteer Coordinator with Solari Hospice, and who would soon become the Director of Volunteer Services here at Hospice Care of the West. Denise followed Donna around for two years, interviewing her and chronicling the things that Donna and her volunteers did. And then in 2010 shortly after her own mother had passed away, Deb Robson accepted the position as our Executive Director, and immediately hit it off with Denise. I would have loved to have been a fly on the wall in some of those early meetings as the two of them bantered back and forth about the ideas that they could bring to their new endeavor.

As I go over Denise’s book “Parting Ways” in my mind, I can’t help but be taken by the fact that Denise did a life review with her mom. Denise gave her mom a last wish. Denise sat vigil by her bedside in her last hours. Life Review. Last Wishes. Sitting vigil. Do any of those sound familiar? Shannon, Jay and their team do a fantastic job with the Life Review videos with our families. Caitlin Crommet started the DreamCatchers program four years ago through Hospice Care of the West, providing last wishes for our patients.  And our Volunteer Department provides Vigil Volunteers, so no one has to die alone. Celebration was conceived because Denise and Deb thought it was important to celebrate us as we care for our patients and their families. These are some of the things that make our hospice a fulfilling and very unique place to work, and these are things that Denise, along with Deb and Jay, have helped bring to the fore-front at Hospice Care of the West.

Denise held a celebration for her mom before she passed, and Linda was able to hear all of the wonderful things that people had to say about her, and hear about all of the lives she had touched. We hold Celebration every other month, so we can share our stories of touching the lives of our patients and celebrate each other. Denise has done such a wonderful job of celebrating us, so I wanted to celebrate her today. Thank you Denise, for bringing us your heart, your soul, your wisdom and your experiences. Your story is truly your gift to us.

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Debbie Robson, Executive Director of Hospice Care of the West, described Celebration on October 15th as “Powerful, the best one so far.”  I have to agree. I brimmed with pride and joy as I watched the Reminiscing Corner. Thank you to our Office Team. You are the cornerstone of Hospice Care of the West.

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Hospice Care of the West Commercial from point of view of the doctor to raise awareness that patients have a choices in hospice and end-of-life care.

Check out our new commercial! Dr. Kasra Morsh and Dr. Kang Hsu joined us at Hospice Care of the West to film our fourth commercial.  Both doctors gave us such insight on why they choose Hospice Care of the West for their patients. Often folks hear about hospice when it’s too late and so we created these commercials to educate the community and raise awareness. Patients and families have choices even in their most vulnerable hour. Dr. Morsh talked of how the whole team—nurse, social worker, spiritual care coordinator and home health aid have a lot of heart, compassionate and drive to go beyond their call to make patients comfortable and provide a safety net of support for the family. Dr. Hsu agreed that the hospice team takes care of the patient and the family.

Dr. Hsu enlightened us on recent studies that report how patients often live longer than the expected prognosis of six months or less if they transition into hospice earlier in their journey because their pain is under control. With hospice, patients have a better quality of life surrounded by a team dedicated to their physical, emotional, familial and financial needs in their home, or the place they call home. The doctors shared how they approach end-of-life conversations with their patients, more importantly we learned that they’ve never had a patient unhappy after transitioning their care to hospice. Choosing the right hospice is so important when it comes to creating a comfortable, pain-free environment filled with dignity for the patient and the family.

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Karyn Randall, Business Development Director, at Hospice Care of the West, is a hero for saving the life of Pat at Don Jose Restaurant in Anaheim.

Recently at Don Jose restaurant for lunch in Anaheim, Karyn Randall, the Business Development Director at Hospice Care of the West, heard a man shouting “HELP, HELP, HELP” coming from the lobby. Curious, she stretched her neck around the corner to see an elderly man embracing a lifeless woman.

“Pat,” he begged. “Please stay with me. Please stay with me. Don’t leave me Pat.”

Karyn felt a rush of adrenaline. And she threw her purse to Debbie Robson, Executive Director of Hospice Care of the West. Karyn felt herself shaking, as she ran to their side to help.

She looked down to see Pat’s face turning ashen and eyes rolling back. Her body was seizing. Karyn checked her heart.  No heartbeat. Her own fear subsided as she felt an out of body experience. She started chest compressions and giving CPR. Karyn focused on counting but still could hear the elderly man’s voice echoing.

“Please stay with me Pat,” he said repeatedly in distress.

Within minutes, the life sweep back into Pat as color returned to her face and her eyes stopped rolling. Karyn checked her heart. It started beating again.

“Can I have my fajitas now,” Pat said as she came to. The ambulance showed up shortly after to take Pat to the hospital.

Karyn sighed a breath of relief.  It took a lot of courage to save Pat’s life, as that was the first time Karyn performed CPR.

Ironically, growing up in Orange, Calif., one of six girls, Karyn recalled having a fear of hospitals and anything to do with medicine until shortly after her 21^st birthday.

Karyn carried her sick 18-month-old nephew, Alex, into the pediatrician. A battery of tests followed. And then the doctor delivered a cancer diagnosis with a one percent chance to live.

“We’re a tight knit family,” Karyn said. “But this brought us all even closer. The doctor recommended that we all learn CPR for Alex.”

The family lived with Alex at Children’s Hospital of Orange County everyday in shifts around the clock. Karyn grew a bond with the doctors, nurses and the families at the hospital.

“I couldn’t stop asking questions of the doctors and nurses,” Karyn said. She needed to know the details of the code blues and every treatment. A family member was always at his side as the life swept in and out of Alex. Even if he survived for a few years, the doctors said he would have limited brain capacity. And in her family’s darkest hour, Karyn felt a calling.

She enrolled in college to get her Licensed Vocational Nursing degree. After graduation, she joined a duo team of pediatricians in Orange. Her personal experience gave her an inner strength to guide families grappling with a sick child.

“I became a positive role model for the families,” she said. She advised families to live in the moment. A year later, Alex was released from the hospital and given a clean bill of health. The doctors at CHOC believed it was his mother and family’s positive attitude and constant vigil that kept him alive.

By Alex’s next birthday, Karyn was ready to transition out of pediatrics as she met and fell in love with a firefighter. They shared a passion for helping people in need and soon married. After the wedding, Karyn’s focus turned to starting her own family. She transitioned out of pediatrics and into marketing for a nursing home.

“My passion is geriatrics,” Karyn said. She saw her mother’s love for helping people and “do, do, do” nature in every lady in the nursing home. And her father’s drive for working to support his family lived in hearts of the men.

Two years after her wedding day, she gave birth to John Thomas.  He made her see the world differently. Sure she was a worrier because of her experience with Alex. Eventually, she took her own advice to live in the moment and bask in the joy of motherhood, whatever that brought her way. Four years later, Karyn birthed her baby girl, Annie.

As her family grew, her career in geriatrics evolved. A friend suggested she join a hospice company. Karyn’s initial reaction was “Heck no, I’m afraid of dying”. Again, her fears gave way to a deeper calling. Hospice brought together all the threads of her life experiences. She became a pillar of positive support for the families in hospice care. Four years into her hospice career, she received a call to join Hospice Care of the West. She refused, but not for long.

A week later, Karyn’s grandmother needed hospice. She gave her business card to the hospital nurse and just assumed they would call her hospice company. She then went home to prepare for her grandmother’s homecoming.

The doorbell rang and Karen Rose, R.N. a Hospice Care of the West admissions nurse stood on her doormat. Out of curiosity, Karyn invited her in. She watched in amazement. This nurse spent four hours with Karyn transforming her home into a comfortable place for her grandmother to return.

“I was like holy cow,” Karyn said. “I’d never seen a nurse work with a family like this before. It was phenomenal, the only thing I could think of was everyone deserves care like this.  The admissions nurses I worked with were in and out in an hour. Often I stayed with the family because I didn’t trust the nurse to support the family through the early hours of their transition in hospice.”

The social worker and team from Hospice Care of the West followed and supported Karyn and her care for her grandmother in such an awesome, compassionate and complete way. Three weeks later, she joined Hospice Care of the West. For the first time in her life, she felt like she wasn’t selling a service.

“I feel honored to share hospice with doctors, families and patients because I know that we all feel lucky to be there for them and I know in my heart, I buy cialis discount can deliver on every promise,” Karyn said.

The word courage comes from the Latin word heart. Karen acts and speaks from the heart. Looking back over her journey so far, Karyn overcame her fears of medicine to be present for her nephew, Alex. That experience gave her the undeniable courage to now be that present light for families. Today, her family celebrates Alex’s recent graduation from college and his seven full-ride scholarship-offers for law school.

After lunch at Don Jose, Karyn realizes you can summon the courage to make anything possible even bringing someone back to life. Karyn received a call from Jerry, Pat’s brother, to invite her out to lunch to celebrate Pat’s life at Don Jose after she gets out of rehab. Pat suffered a massive heart attack, stayed in hospital for seven days, and is now in rehab thanking God everyday for Karyn.

Debbie sent out an email to the Hospice Care of the West team sharing the story of the “Hero Among Us” and Karyn was virtually toasted by her peers via email. One toast from Alan Grotsky said, “Rarely can you go to work in the morning at hospice and SAVE A LIFE.” Another one from Erin Rodgers, remarked, “Way to Go K, you earned your angel wings today.”

As I read the emails, tears welled. I remember the first time that I heard of Karyn. Deb described her as Tinker Bell spreading the light of hospice to doctors, patients and families in their darkest hour. Now, I realize those wings existed long before the day she saved Pat’s life.

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Lights, Camera, Action! Yes, we filmed a commercial with a real hospice patient, Arline Perrizo at 95 years old, her daughter, Mary, and her team of “hospice angels” from Hospice Care of the West in Orange County, Calif. Arline is star. Check out the commercial. It’s now airing. Thank you Arline and Mary! Like a real movie star, Arline started the day in hair and make-up with professional stylist and hospice volunteer, Nancy Johnson.

Jay Gianukos, the director of the commercial, filmed Arline in the spotlight. She basked in all of the attention.She then joined me on the film set equipped with lights, video cameras, sound equipment and a crew in her living room. I interviewed Arline, who was an elementary school teacher and by doing this commercial she had a chance to teach one last time. This lesson would take place on a film set instead of her classroom and her students would be our community in need of learning how much hospice benefited her life and her daughter’s. Mary wanted her mother to stay at home but her mother had taken a bad fall that landed her in hospital. When she was discharged, Hospice Care of the West came on to help Mary care for her Mom and provide a safety net of support that has brought them so much relief and peace.

Hospice is a team approach to end-of-life care in the home, or wherever a patient calls home, for the patient with a life expectancy of six months or less to live. Mary and Arline have support from a nurse, social worker, spiritual care counselor, home health aid and volunteer. Read more about hospice care here. Also, the volunteer services at Hospice Care of the West brought Mary and Arlene so much joy. Shannon Sirovy, the director of volunteer services at Hospice Care of the West, had already filmed a life review video of Arlene reminiscing about her life that she can now pass on her wisdom and legacy of memories to her children and grandchildren. The life review video is a gift from Hospice Care of the West created with volunteer hours of a life review interview that is then edited with family pictures and music. Read more about life review video here.

Thank you Arline and Mary for sharing your experiences with us and for other families to learn the benefits to choosing hospice that focuses on comfort care. Many people don’t realize that you have a choice in hospice. And choosing the right team to care for you in the most vulnerable hour is vital to living with peace and comfort even when time is limited. My most favorite moment of the commercial shoot was when Dave Boyle, the spiritual care coordinator, sat down with Arline and Mary. He asked if he could read a passage from the Bible and Arlene agreed. Then he placed his hand gently on Arline’s hand and said, “You can read it with me, if you know it.” And in an instant, a peace fell over the room as Dave read the 23^rd Psalm and Arline joined him. After he asked if she wanted him to pray for her, and she smiled “yes” and sighed relief. I witnessed each of the team members Cheryl, the nurse, Angela, the social worker, Dave and Shannon had such a gift to give and together surround them with everything that they need to make this journey that is often wrenching for families instead be a time of peace, joy and reflection.

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On the morning of our third Celebration!, I truly felt like this gathering had become a tradition of our mission to celebrate the lives of our patients and each other. Celebration! is now woven into the fabric of our daily lives and a time we have come to rely on to renew our spirits. Check out the video that gives you a flavor of what these unique Celebrations are all about.

In this season of celebrating, Debbie Robson, the Executive Director of Hospice Care of the West, and I opened the gathering by inviting the team to write the name of someone they want to remember on an ornament and hang it on the three trees that lined the doorway to the Celebration. I saw the names of patients’, Mom, Dad, friends and other loved ones’ names inscribed with love on these ornaments. Each one held the presence of that person we all spent a moment to reflect on.

So many folks walked in with such an attitude of gratitude for the Celebration! I could feel it in the air. So, I asked each person to turn to the person next to him or her and share something they were most grateful for this year. It was just after Thanksgiving and so it felt appropriate. Then I requested volunteers to share what their peers were grateful for. The Reminiscing Corner Video celebrating the Spiritual Care Coordinators followed. Please watch by clicking on the video below.

These spiritual care coordinators shared the journeys that led them into a calling to serve God and later hospice patients. They received a wide applause for sharing their stories with such genuine, authenticity.

I read the living eulogy of Kathy Rojas. There were tears flowing around the room. Thanks again Kathy for your beautiful life story. It was a honor to write it. Click here to read it.

The invitation to Celebration 3!

Then Debbie shared the story of some of the special gifts her patients have given her during her 20 years as a hospice nurse. She shared the lovely story of how this classy patient would bring out her best china to serve Debbie cookies and tea on her hospice nurse visit. They would sit, have tea and conversations about life. Then she invited others to share gifts, wisdom and experiences hospice patients had graciously bestowed. My favorite was one of the nurses sharing how she did the hula dance with her one of her hospice families in honor of their mother. She really did stand an hula for all of us at the Celebration!
It was magical. Check out the montage video above and you’ll get a sense of just how magical this open microphone time is to the team at Hospice Care of the West. We have the most amazing community thriving and celebrating in hospice!

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The Spiritual Care Coordinators at Hospice Care of the West joined us for a

Reminiscing Corner. We listened to their stories, retraced their footsteps to the life moment that called them into hospice care and found inspiration in how they help people prepare spiritually for the end of life. We also asked one of the pastors from the community to join us and share how hospice has benefited his church members. Click below to watch.

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